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EFNA host Governance & Transparency Workshop

EFNA host Governance & Transparency Workshop

A two-day workshop on Governance and Transparency was held by EFNA in Dublin from March 22 – 23rd. Noémi Ambrus, Senior Trainer with Civil Support, Budapest hosted the workshop. Go ...

Burden of Stroke in Europe Report to be launched at first EU Stroke Summit

Burden of Stroke in Europe Report to be launched at first EU Stroke Summit

On May 11th The Stroke Alliance for Europe (SAFE) will host the first EU Stroke Summit and launch of the Burden of Stroke in Europe report at the European Parliament in Strasbourg. ...

Calling the EU to action after 200 years of Parkinson’s disease

Calling the EU to action after 200 years of Parkinson’s disease

To mark the 200-year anniversary of the discovery of Parkinson’s disease on 11 April, the European Parkinson’s Disease Association (EPDA) held a high-level policy workshop in the E ...

Societal Impact of Pain (SIP) 2017 Registration Opens

Societal Impact of Pain (SIP) 2017 Registration Opens

The SIP 2017 symposium from the 7th and 9th of June 2017 will take place under the auspice of the agenda of the 2017 Maltese Presidency of the Council of the EU in Valletta, the ca ...

Can Real World Data Advance the Equity of Health Care in Europe? – An EMSP Event

Can Real World Data Advance the Equity of Health Care in Europe? – An EMSP Event

The European Multiple Sclerosis Platform (EMSP), together with MEP Cristian BUSOI and MEP Katerina KONECNA are pleased to invite you to the conference Can Real World Data Advance t ...

EFNA ANNOUNCE WINNERS OF NEUROLOGY ADVOCACY AWARDS 2016

EFNA ANNOUNCE WINNERS OF NEUROLOGY ADVOCACY AWARDS 2016

In 2016, EFNA held – once again – its Neurology Advocacy Awards. These awards recognise the contribution of an individual or group to the development and promotion of advocacy for ...

ACCESS TO EMPLOYMENT FOR THOSE AFFECTED BY NEUROLOGICAL DISORDERS AND CHRONIC PAIN CONDITIONS

ACCESS TO EMPLOYMENT FOR THOSE AFFECTED BY NEUROLOGICAL DISORDERS AND CHRONIC PAIN CONDITIONS

The launch of the Written Declaration will take place on October 25TH 2016 at the European Parliament, Strasbourg. The event will take place during a Breakfast Meeting from 8.30am ...

EFNA host Governance & Transparency Workshop

A two-day workshop on Governance and Transparency was held by EFNA in Dublin from March 22 – 23rd. Noémi Ambrus, Senior Trainer with Civil Support, Budapest hosted the workshop. Governance We began by examining the board’s roles and responsibilities. These can be summarised as to: Establish Mission Set Direction Ensure Resources Provide oversight Extend outreach Noémi described board members as needing to w ...

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Burden of Stroke in Europe Report to be launched at first EU Stroke Summit

On May 11th The Stroke Alliance for Europe (SAFE) will host the first EU Stroke Summit and launch of the Burden of Stroke in Europe report at the European Parliament in Strasbourg. Stroke accounts for more than 9% of all deaths and is the leading cause of long term severe disability in Europe. Despite its impact on societies and economies, stroke continues to receive limited attention among European policy- ...

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Calling the EU to action after 200 years of Parkinson’s disease

To mark the 200-year anniversary of the discovery of Parkinson’s disease on 11 April, the European Parkinson’s Disease Association (EPDA) held a high-level policy workshop in the European Parliament on 29 March. Donna Walsh, EFNA’s Executive Director, moderated the discussions, which focused on the cross-cutting challenges to timely diagnosis and individualised treatment and care, and what lawmakers in Brus ...

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EFNA joins global appeal to #Unite for Parkinson’s

#Unite for Parkinson’s, a campaign launched earlier this year by two of Europe’s leading Parkinson’s charities – the European Parkinson’s Disease Association (EPDA) and Parkinson’s UK – aims to raise international awareness of the condition on World Parkinson’s Day (Tuesday 11 April), 200 years after it was first officially recognised. The campaign is spreading across the world, with thousands of campaign p ...

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Cluster Headache Awareness Day 2017

‘Arguably one of the worst pains known to man’ Announcing Cluster Headache Day– 21st March in European Parliament, Brussels. The event will be held in the room Altiero Spinelli A1H-1 from 11.00 to 13.30. March 2017 – The European Headache Alliance (EHA) and European Headache Federation (EHF) announce the second ‘Cluster Headache Day’ event hosted by MEP Stevens on 21st March 2017. Cluster Headache (CH) affe ...

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Societal Impact of Pain (SIP) 2017 Registration Opens

The SIP 2017 symposium from the 7th and 9th of June 2017 will take place under the auspice of the agenda of the 2017 Maltese Presidency of the Council of the EU in Valletta, the capital of Malta. Inspired by the Maltese presidency “Structured Cooperation between Health Care Systems tackling the societal impact of pain!” has been chosen as the title for SIP 2017. Experts from multiple disciplines will attend ...

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EMEA Organises Meeting in EU Parliament on Myalgic Encephalomyelitis (ME)

The European ME Alliance is a collaboration of 13 Myalgic Encephalomyelitis (ME) organisations in European countries who have the common aim of promoting biomedical research into Myalgic Encephalomyelitis and increasing awareness of this debilitating neurological disease. Following months of planning EMEA is arranging a high-level meeting in the European Parliament on 7th March 2017. The meeting will cover ...

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Can Real World Data Advance the Equity of Health Care in Europe? – An EMSP Event

The European Multiple Sclerosis Platform (EMSP), together with MEP Cristian BUSOI and MEP Katerina KONECNA are pleased to invite you to the conference Can Real World Data Advance the Equity of Health Care in Europe? The event will take place in the European Parliament on 7 March, room ASP A3E2, between 11:00 – 12:30. EMSP is organising this event as a reaction to current discussions on the importance of rea ...

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Shire Announces 2016 Excellence in ADHD Patient Group Award Winners

To coincide with ADHD Awareness Month, Shire plc today announced the winners of the 2016 Excellence in ADHD Patient Group Awards.[1] The awards celebrate outstanding work by patient advocacy organisations around the world that aim to improve the lives of people with attention-deficit/hyperactivity disorder (ADHD). On behalf of Shire, an international panel of judges, including EFNA President Ann Little, awa ...

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EFNA ANNOUNCE WINNERS OF NEUROLOGY ADVOCACY AWARDS 2016

In 2016, EFNA held – once again – its Neurology Advocacy Awards. These awards recognise the contribution of an individual or group to the development and promotion of advocacy for people with neurological disorders in Europe. This year’s winners were presented with their awards at a Gala Dinner in Dublin on October 13th. The winning European Policy-Maker for 2016 was Marian Harkin MEP. She was nominated for ...

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