EMEA Organises Meeting in EU Parliament on Myalgic Encephalomyelitis (ME)
The European ME Alliance is a collaboration of 13 Myalgic Encephalomyelitis (ME) organisations in European countries who have the common aim of promoting biomedical research into Myalgic Encephalomyelitis and increasing awareness of this debilitating neurological disease.
Following months of planning EMEA is arranging a high-level meeting in the European Parliament on 7th March 2017.
The meeting will cover different topics that Members of the European Parliament ought to be aware of – including creating awareness on the quality of life and disability regarding people with ME.
An agenda has been created by EMEA in cooperation with Mrs Helga Stevens MEP.
The meeting will be held with breakfast and it is hoped that EMEA can begin the process of adjusting the perception, treatment and funding of research for myalgic encephalomyelitis within the political environment in the EU.
The meeting follows intensive work by EMEA members recently within Europe – having opened discussions with the WHO on ICD-11 and writing to the Danish Members of the Funktionelle Lidelser Working Group (click here).
Overview of ME & EU Issues – Dr. Ian Gibson
MD’s View of Issues – Dr. Olli Polo
Kinderen en ME – Dr. Nigel Speight
Quality of life – Nancy Van Hoylandt
Challenges and Care for Patients – Dr. Louise Brinth
UN Convention on Rights of Persons w. Disabilities – MEP Assistant László Lovászy
Centre of Excellence (Good practice example) – Dr. Simon Carding