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Increased Patient Participation at Joint Congress of European Neurology

Patient participation on scientist panels/sub-committees, a large patient corner in the exhibition centre, a joint awareness session and attendance at the Training, Education and Liaison Committees – EFNA’s participation at the Joint Congress of Neurology reaches a new high! As the new European Academy of Neurology comes into being, EFNA is pleased to announce that it enjoyed its most active and meaningful ...

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Brain Disorders: The Communication Challenge

Communicating effectively with those affected by brain disorders can be challenging. Certain brain disorders restrict the ability of the patient to communicate, listen and absorb information. At the Joint Congress of European Neurology, EFNA organised an Awareness Session on ‘Brain Disorders: The Communication Challenge’. This session took the format of an interactive workshop focussing on how the neurologi ...

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European Academy of Neurology is founded

June 3rd 2014 – Today the European Academy of Neurology [EAN] is founded. The new EAN is a merger of the European Federation of Neurological Societies [EFNS] and the European Neurological Society [ENS]. During its first General Assembly, the 72 institutional and individual delegates from 45 member countries of the Society elected the Officers of the Board. The results of this vote are below and the new Offi ...

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EFNA organises pilot HTA workshop in Ireland

EFNA organised a pilot national workshop in Ireland on the topic of Pharmaceutical Pricing, Access and Reimbursement. One of EFNA’s keynote initiatives has been patient training workshops at the London School of Economics [LSE]. The LSE and EFNA have worked together for four years to deliver training to patient groups on health technology assessment (HTA). Over this period, seven training courses have been ...

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“Out of Office” European Parliament event

Report highlights widespread variation in sick leave benefits across Europe   Wednesday, February 19th at the European Parliament   The Economist Intelligence Unit [EIU] presented ‘Out of office! – An overview of workplace absenteeism in Europe’* at an event co-hosted by MEPs Marian Harkin and Linda McAvan, in conjunction with the European Federation of Neurological Associations (EFNA), Pain Allia ...

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OUT OF OFFICE! – EU Parliamentary Event

   EFNA to host Parliamentary Lunch to mark the official launch of research from the Economist Intelligence Unit on the economic and social cost of workplace absenteeism in Europe. The event will explore: - Who pays: employers, employees or the State? - What is the real cost to patients? - And what are the European Institutions doing to help? The event is hosted by MEPs Marian Harkin and Linda McAvan – ...

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Patients + Participation = Our Vote for a Healthier Europe

Endorsing European Patients’ Forum EU Elections Campaign The campaign aims at creating a sense of urgency and real imperative to address the fundamental roadblocks to patients’ access to proper healthcare and to demonstrate how patients can be part of the solution to make health systems more effective and quality-oriented. These are the outlined objectives: To raise the voice of European patients to enable ...

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Read Recommendations from Month of the Brain

The Recommendations and Conclusions from the European Month of the Brain have now been published by the European Commission. EFNA played a key role on the scientific steering committee for the Month, and we are glad to report that the role of patients is central to the recommendations. You can read the summary below or access the full report by CLICKING HERE.   1. Promote the role of patients in all st ...

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What’s the EMA’s black triangle?

A black triangle will start appearing on product information this autumn to encourage reporting of suspected adverse reactions. The European Medicines Agency has published a video and a factsheet in all official European Union (EU) languages today explaining the meaning of the black triangle, which is now starting to appear in the product information of certain authorised medicines in the EU. The black tria ...

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Meet EFNA’s new Members!

EFNA welcomed four new Members at our General Assembly 2013 - two Full and two Associate. Check-out our updated Members Directory or learn more about the following organisations below: European Mysathenia Gravis Association, International Bureau for Epilepsy, Pain Alliance Europe and Danish Trigeminal Neuralgia Association.   EUROPEAN MYASTHENIA GRAVIS ASSOCIATION The European Myasthenia Gravis Associa ...

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EFNA is registered in Belgium as an Association Sans But Lucratif (ASBL) #0543319269 | Website by www.bizify.ie

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