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OUT OF OFFICE! – EU Parliamentary Event

   EFNA to host Parliamentary Lunch to mark the official launch of research from the Economist Intelligence Unit on the economic and social cost of workplace absenteeism in Europe. The event will explore: - Who pays: employers, employees or the State? - What is the real cost to patients? - And what are the European Institutions doing to help? The event is hosted by MEPs Marian Harkin and Linda McAvan – ...

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Patients + Participation = Our Vote for a Healthier Europe

Endorsing European Patients’ Forum EU Elections Campaign The campaign aims at creating a sense of urgency and real imperative to address the fundamental roadblocks to patients’ access to proper healthcare and to demonstrate how patients can be part of the solution to make health systems more effective and quality-oriented. These are the outlined objectives: To raise the voice of European patients to enable ...

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Read Recommendations from Month of the Brain

The Recommendations and Conclusions from the European Month of the Brain have now been published by the European Commission. EFNA played a key role on the scientific steering committee for the Month, and we are glad to report that the role of patients is central to the recommendations. You can read the summary below or access the full report by CLICKING HERE.   1. Promote the role of patients in all st ...

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What’s the EMA’s black triangle?

A black triangle will start appearing on product information this autumn to encourage reporting of suspected adverse reactions. The European Medicines Agency has published a video and a factsheet in all official European Union (EU) languages today explaining the meaning of the black triangle, which is now starting to appear in the product information of certain authorised medicines in the EU. The black tria ...

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Meet EFNA’s new Members!

EFNA welcomed four new Members at our General Assembly 2013 - two Full and two Associate. Check-out our updated Members Directory or learn more about the following organisations below: European Mysathenia Gravis Association, International Bureau for Epilepsy, Pain Alliance Europe and Danish Trigeminal Neuralgia Association.   EUROPEAN MYASTHENIA GRAVIS ASSOCIATION The European Myasthenia Gravis Associa ...

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EFNA makes big splash at World Congress of Neurology 2013

Patient Corner @ WCN: For the first time, EFNA hosted a Patient Corner in the Exhibition Centre where our Member Groups and Partners were invited to distribute information and network with the health professional and industry delegates from across the world. Stands were taken by European Headache Alliance, European Huntington's Association, European Polio Union, International Brain Tumour Alliance, Danish T ...

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Pledge launched to protect neuroscience research & neurology patients

Putting Neurology Patients First: A pledge to support essential investment in neuroscience research and to protect the interests of neurology patients To mark European Month of the Brain [EMOB], EFNA has launched its pledge to protect neuroscience research and neurology patients. The launch took place at the official kick-off event for EMOB at the European Parliament on April 23rd, organised by the Scientif ...

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Registration open for 2014 EFNA Workshops at LSE

2014 patient workshops: Register your interest now! Topic: Pharmaceutical Pricing, Access and Reimbursement EFNA invites representatives from patient associations to register their interest in upcoming workshops on Pharmaceutical Pricing, Access and Reimbursement at the London School of Economics. This important initiative is aimed at equipping participants with the knowledge and skills they need to be acti ...

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Report from EFNA’s ‘Advocate for Neurology’ Workshop

DOWNLOAD THE PRESENTATIONS HERE! May 2013 has been designated by the European Commission as ‘European Month of the Brain’ [EMOB]. We, at the European Federation of Neurological Associations [EFNA], want to ensure that neurology patient groups across Europe are ready to take advantage of this Month. So, we invited patient representatives from National and European neurology patient groups to participate in a ...

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Training and capacity building

Pictured above: Participants at one of our workshops at LSE Patient Academy at the London School of Economics Next Course: February 23 and 24 2015 REGISTRATION NOW CLOSED DOWNLOAD THE DRAFT PROGRAMME HERE  There is increasing emphasis on ‘patient centred healthcare’ and greater involvement of patient groups in policy setting at all levels. However, it is clear that not all patient groups are sufficiently sk ...

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EFNA is registered in Belgium as an Association Sans But Lucratif (ASBL) #0543319269 | Website by www.bizify.ie

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