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What’s the EMA’s black triangle?

A black triangle will start appearing on product information this autumn to encourage reporting of suspected adverse reactions. The European Medicines Agency has published a video and a factsheet in all official European Union (EU) languages today explaining the meaning of the black triangle, which is now starting to appear in the product information of certain authorised medicines in the EU. The black tria ...

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Meet EFNA’s new Members!

EFNA welcomed four new Members at our General Assembly 2013 - two Full and two Associate. Check-out our updated Members Directory or learn more about the following organisations below: European Mysathenia Gravis Association, International Bureau for Epilepsy, Pain Alliance Europe and Danish Trigeminal Neuralgia Association.   EUROPEAN MYASTHENIA GRAVIS ASSOCIATION The European Myasthenia Gravis Associa ...

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EFNA makes big splash at World Congress of Neurology 2013

Patient Corner @ WCN: For the first time, EFNA hosted a Patient Corner in the Exhibition Centre where our Member Groups and Partners were invited to distribute information and network with the health professional and industry delegates from across the world. Stands were taken by European Headache Alliance, European Huntington's Association, European Polio Union, International Brain Tumour Alliance, Danish T ...

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Pledge launched to protect neuroscience research & neurology patients

Putting Neurology Patients First: A pledge to support essential investment in neuroscience research and to protect the interests of neurology patients To mark European Month of the Brain [EMOB], EFNA has launched its pledge to protect neuroscience research and neurology patients. The launch took place at the official kick-off event for EMOB at the European Parliament on April 23rd, organised by the Scientif ...

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Registration open for 2014 EFNA Workshops at LSE

2014 patient workshops: Register your interest now! Topic: Pharmaceutical Pricing, Access and Reimbursement EFNA invites representatives from patient associations to register their interest in upcoming workshops on Pharmaceutical Pricing, Access and Reimbursement at the London School of Economics. This important initiative is aimed at equipping participants with the knowledge and skills they need to be acti ...

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Report from EFNA’s ‘Advocate for Neurology’ Workshop

DOWNLOAD THE PRESENTATIONS HERE! May 2013 has been designated by the European Commission as ‘European Month of the Brain’ [EMOB]. We, at the European Federation of Neurological Associations [EFNA], want to ensure that neurology patient groups across Europe are ready to take advantage of this Month. So, we invited patient representatives from National and European neurology patient groups to participate in a ...

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Training and capacity building

Pictured above: Participants at one of our workshops at LSE Patient Academy at the London School of Economics Next Course: February 23 and 24 2015 REGISTRATION NOW CLOSED DOWNLOAD THE DRAFT PROGRAMME HERE  There is increasing emphasis on ‘patient centred healthcare’ and greater involvement of patient groups in policy setting at all levels. However, it is clear that not all patient groups are sufficiently sk ...

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EFNA General Assembly opens to non-member European Neurology Patient Groups

The EFNA General Assembly will be held in Brussels on Tuesday,  October 30 from 09.00hrs until 13.00hrs at the NH du Grand Sablon Hotel, Rue Bodenbroek 2/4, Brussels: http://www.nh-hotels.com/nh/en/hotels/belgium/brussels/nh-hotel-du-grand-sablon.html The General Assembly will feature an interactive session on ‘How can EFNA best serve its members?’ This forum will provide those in attendance with the opport ...

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EFNA/EFNS joint session confirmed at the World Congress of Neurology 2013

Following on from successful EFNA/EFNS Awareness Sessions at the European Federation of Neurological Societies [EFNS] annual congress – it has been confirmed that both organisations will again work together on a joint session at the 2013 World Congress of Neurology. The session entitled ‘The Future of Neurology’ will allow us to partner to improve health policy/provision for health professionals, researcher ...

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EFNA Report from the European Federation of Neurological Societies Annual Congress

EFNA enjoys a successful collaborative relationship with the European Federation of Neurological Societies [EFNS] – the association for neurologists across Europe. At the each EFNS Congress, EFNA is awarded a number of slots on the programme. This year the annual Good Life Session highlighted ‘Music Powering Brain Change’ and featured a presentation (and flute performance) from neurologist Dr EckartAltenmul ...

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EFNA is registered in Belgium as an Association Sans But Lucratif (ASBL) #0543319269 | Website by www.bizify.ie

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