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Patient Involvement in Research – How and Why those with Brain, Mind and Pain Disorders must be involved – Meeting Report

22 June 2016, 8.30 -10.00h Members’ Salon, European Parliament, Brussels An initiative of the European Federation of Neurological Associations [EFNA] & Pain Alliance Europe [PAE] This meeting was hosted by Marian Harkin MEP, who opened by saying that many life-threatening diseases have been eradicated thanks to years of effort by physicians, scientists, and medical professionals investigating the causes ...

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ASOP EU to raise public awareness about fake medicines and buying medicines safely from the internet

Illegally operating internet sites selling medicines pose a significant public health risk to those patients/consumers purchasing online. These websites exhibit numerous concerning characteristics: they may provide prescription-only drugs without a prescription, offer consumers access to foreign and unapproved drugs, and sell what are often referred to as falsified medicines. They also, steal customers pers ...

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Malta shall talk about chronic pain: Societal Impact of Pain Symposioum 2017 will be held in Malta

No Pain Foundation, a Maltese non-profit organisation of patients and professionals operating on European territory for the improvement of the quality of life of people suffering from chronic pain, has been invited to represent Malta as part of the Maltese delegation at the SIP Symposium 2016 (Societal Impact of Pain) which was held in Brussels on the 23rd and 24th of May. The Societal Impact of Pain Sympos ...

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SIP 2016 builds a strong legacy

SIP 2016 came to a close by putting forward a series of policy recommendations to fundamentally change pain care and the effect of pain on society. They include 8 points for considerations to EU and national policy makers: Implement article 8.5 of the Cross-border Healthcare Directive Establish an EU platform on the societal impact of pain Integrate chronic pain within EU policies on chronic diseases Ensure ...

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EU-funded project exploits big data for earlier dementia diagnosis

Earlier diagnosis of dementia and a better understanding of its effect on the body are needed in order to give patients more treatment options and provide researchers with more information on how to develop more effective treatments and new diagnostic techniques. VPH-DARE@IT (Virtual Physiological Human: Dementia Research Enabled by IT) is an EU-supported research project that began in April 2013 and conclu ...

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Together Under the Umbrella to make A Big Splash for World Brain Day July 22nd

How do I get involved? Simply take a picture under an umbrella and post to social media using the hashtag #UnderTheUmbrella. On July 22nd , we are asking companies, clubs, institutions and organisations to set up a photo opportunity on your premises. All you need is a small space, an umbrella and a smartphone! Ask your staff, members and supporters to step in, take a photo on their smartphone (or your camer ...

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Together Under the Umbrella at The 2nd Congress of the European Academy of Neurology

The 2nd Congress of the European Academy of Neurology (EAN) took place in Copenhagen, Denmark from May 28th-31st, 2016. The Opening Ceremony took place on Saturday evening where attendees were welcomed by Mads Ravnborg, Local Chairperson EAN. EAN President, Günther Deuschl, introduced the newly designed EAN website with member area before passing over to Morten Kringelbach, Director of Hedonia: Trygfonden R ...

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EFNA ADVOCACY AWARDS 2016 – NOMINATIONS NOW OPEN

In 2016, EFNA will hold – once again – its Advocacy Awards. These awards will recognise the contribution of an individual or group to the development and promotion of advocacy for people with neurological disorders in Europe. Nominations for the EFNA Advocacy Awards can be made in each of the below categories: Volunteer Patient Advocate Policy-Maker Health Professional or Health Professional Organisation Em ...

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Huntingtons Disease Awareness Day in Copenhagen – Together Under the Umbrella

A Huntingtons Disease Public Awareness Day took place in Copenhagen on Saturday, May 28TH. The event was organised by the European Huntington Association together with EFNA, to coincide with the annual congress of the European Academy of Neurology. [caption id="attachment_408" align="alignright" width="280"] Astri Arnesen (Vice-President, EHA), Bea de Schepper (President, EHA) and Charlotte Hold (Danish HD ...

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EFNA endorses the Societal Impact of Pain (SIP) Platform

‘Time for Action!’ symposium takes place on 23-24 May in Brussels Pain is one of the most burdensome symptoms of many neurological disorders. This is why EFNA is, once more, endorsing the SIP platform symposium. Pain places a heavy burden not only on people but also on society, in the form of elevated healthcare, social and employment costs. According to the SIP organisers, we’ve reached a point of urgency ...

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EFNA is registered in Belgium as an Association Sans But Lucratif (ASBL) #0543319269 | Website by www.bizify.ie

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