[gtrans]
You Are Here: Home » News & Events (Page 2)

Calling the EU to action after 200 years of Parkinson’s disease

To mark the 200-year anniversary of the discovery of Parkinson’s disease on 11 April, the European Parkinson’s Disease Association (EPDA) held a high-level policy workshop in the European Parliament on 29 March. Donna Walsh, EFNA’s Executive Director, moderated the discussions, which focused on the cross-cutting challenges to timely diagnosis and individualised treatment and care, and what lawmakers in Brus ...

Read more

EFNA joins global appeal to #Unite for Parkinson’s

#Unite for Parkinson’s, a campaign launched earlier this year by two of Europe’s leading Parkinson’s charities – the European Parkinson’s Disease Association (EPDA) and Parkinson’s UK – aims to raise international awareness of the condition on World Parkinson’s Day (Tuesday 11 April), 200 years after it was first officially recognised. The campaign is spreading across the world, with thousands of campaign p ...

Read more

Cluster Headache Awareness Day 2017

‘Arguably one of the worst pains known to man’ Announcing Cluster Headache Day– 21st March in European Parliament, Brussels. The event will be held in the room Altiero Spinelli A1H-1 from 11.00 to 13.30. March 2017 – The European Headache Alliance (EHA) and European Headache Federation (EHF) announce the second ‘Cluster Headache Day’ event hosted by MEP Stevens on 21st March 2017. Cluster Headache (CH) affe ...

Read more

Societal Impact of Pain (SIP) 2017 Registration Opens

The SIP 2017 symposium from the 7th and 9th of June 2017 will take place under the auspice of the agenda of the 2017 Maltese Presidency of the Council of the EU in Valletta, the capital of Malta. Inspired by the Maltese presidency “Structured Cooperation between Health Care Systems tackling the societal impact of pain!” has been chosen as the title for SIP 2017. Experts from multiple disciplines will attend ...

Read more

EMEA Organises Meeting in EU Parliament on Myalgic Encephalomyelitis (ME)

The European ME Alliance is a collaboration of 13 Myalgic Encephalomyelitis (ME) organisations in European countries who have the common aim of promoting biomedical research into Myalgic Encephalomyelitis and increasing awareness of this debilitating neurological disease. Following months of planning EMEA is arranging a high-level meeting in the European Parliament on 7th March 2017. The meeting will cover ...

Read more

Can Real World Data Advance the Equity of Health Care in Europe? – An EMSP Event

The European Multiple Sclerosis Platform (EMSP), together with MEP Cristian BUSOI and MEP Katerina KONECNA are pleased to invite you to the conference Can Real World Data Advance the Equity of Health Care in Europe? The event will take place in the European Parliament on 7 March, room ASP A3E2, between 11:00 – 12:30. EMSP is organising this event as a reaction to current discussions on the importance of rea ...

Read more

Shire Announces 2016 Excellence in ADHD Patient Group Award Winners

To coincide with ADHD Awareness Month, Shire plc today announced the winners of the 2016 Excellence in ADHD Patient Group Awards.[1] The awards celebrate outstanding work by patient advocacy organisations around the world that aim to improve the lives of people with attention-deficit/hyperactivity disorder (ADHD). On behalf of Shire, an international panel of judges, including EFNA President Ann Little, awa ...

Read more

EFNA ANNOUNCE WINNERS OF NEUROLOGY ADVOCACY AWARDS 2016

In 2016, EFNA held – once again – its Neurology Advocacy Awards. These awards recognise the contribution of an individual or group to the development and promotion of advocacy for people with neurological disorders in Europe. This year’s winners were presented with their awards at a Gala Dinner in Dublin on October 13th. The winning European Policy-Maker for 2016 was Marian Harkin MEP. She was nominated for ...

Read more

TRAINING INITIATIVES FOR NEUROLOGY ADVOCATES LAUNCH

In 2016, EFNA launched its Training Initiatives for Neurology Advocates [TINA]. For many years EFNA has run workshops on Health Technology Assessment and, lately, Pharmaceutical Policy – Pricing, Access and Reimbursement at the London School of Economics. However, feedback from participants indicates that patients now need to be equipped to use the theoretical knowledge gained on these processes, and the wi ...

Read more

ACCESS TO EMPLOYMENT FOR THOSE AFFECTED BY NEUROLOGICAL DISORDERS AND CHRONIC PAIN CONDITIONS

The launch of the Written Declaration will take place on October 25TH 2016 at the European Parliament, Strasbourg. The event will take place during a Breakfast Meeting from 8.30am at the Member’s Salon. For further information on the Written Declaration please visit the Brain Mind and Pain MEP Interest Group website here or contact our EU Affairs person, Heather Clarke, at euaffairs@efna.net. ...

Read more

EFNA is registered in Belgium as an Association Sans But Lucratif (ASBL) #0543319269 | Website by www.bizify.ie

Scroll to top