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EFNA welcomes second neurological patient experience survey

The Neurological Alliance (England) has launched its second neurological patient experience survey. The survey aims to collect vital information about the experiences of care received by people affected by neurological conditions and help us to understand how much progress has been made in improving neurological services. The survey is open until September 30th and the Alliance welcomes responses from anyon ...

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Association of Patients with Neurodegenerative Conditions in Romania (APAN) is launched on World Brain Day

The 22nd of July was World Brain Day, an initiative of the The World Federation of Neurology. This year, the theme was linked to the ageing population and the chosen motto was 'The ageing brain'. The prevalence of a number of neurological diseases increases with age, including stroke, dementia, and Parkinson’s disease. It is estimated that 10 to 20 percent of people aged 60 to 80 years suffer from one or mo ...

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Good practice for the off-label use of medicines – Save the Date

An event on “Safeguarding patient safety and quality of care in Europe: Good practice for the off-label use of medicines” will be hosted by MEP Piernicola Pedicini in the European Parliament in Brussels on Tuesday 27 September 2016, between 10.00 and 12.00. This meeting, which brings together a number of leading healthcare and policy stakeholders, aims to thoroughly examine the issue of off-label use of med ...

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A Big Splash for Together Under the Umbrella on World Brain Day!

On July 22nd, in celebration of World Brain Day 2016, we asked you to get ‘under the umbrella’ for our Big Splash! Individuals, companies, institutions and organisations were encouraged to take a photo under an umbrella and share it to social media to raise awareness of the wide range of brain disorders. We were overwhelmed by the response. People from around the world – including patients, carers, pharmace ...

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Patient Involvement in Research – How and Why those with Brain, Mind and Pain Disorders must be involved – Meeting Report

22 June 2016, 8.30 -10.00h Members’ Salon, European Parliament, Brussels An initiative of the European Federation of Neurological Associations [EFNA] & Pain Alliance Europe [PAE] This meeting was hosted by Marian Harkin MEP, who opened by saying that many life-threatening diseases have been eradicated thanks to years of effort by physicians, scientists, and medical professionals investigating the causes ...

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ASOP EU to raise public awareness about fake medicines and buying medicines safely from the internet

Illegally operating internet sites selling medicines pose a significant public health risk to those patients/consumers purchasing online. These websites exhibit numerous concerning characteristics: they may provide prescription-only drugs without a prescription, offer consumers access to foreign and unapproved drugs, and sell what are often referred to as falsified medicines. They also, steal customers pers ...

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Malta shall talk about chronic pain: Societal Impact of Pain Symposioum 2017 will be held in Malta

No Pain Foundation, a Maltese non-profit organisation of patients and professionals operating on European territory for the improvement of the quality of life of people suffering from chronic pain, has been invited to represent Malta as part of the Maltese delegation at the SIP Symposium 2016 (Societal Impact of Pain) which was held in Brussels on the 23rd and 24th of May. The Societal Impact of Pain Sympos ...

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SIP 2016 builds a strong legacy

SIP 2016 came to a close by putting forward a series of policy recommendations to fundamentally change pain care and the effect of pain on society. They include 8 points for considerations to EU and national policy makers: Implement article 8.5 of the Cross-border Healthcare Directive Establish an EU platform on the societal impact of pain Integrate chronic pain within EU policies on chronic diseases Ensure ...

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EU-funded project exploits big data for earlier dementia diagnosis

Earlier diagnosis of dementia and a better understanding of its effect on the body are needed in order to give patients more treatment options and provide researchers with more information on how to develop more effective treatments and new diagnostic techniques. VPH-DARE@IT (Virtual Physiological Human: Dementia Research Enabled by IT) is an EU-supported research project that began in April 2013 and conclu ...

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Together Under the Umbrella to make A Big Splash for World Brain Day July 22nd

How do I get involved? Simply take a picture under an umbrella and post to social media using the hashtag #UnderTheUmbrella. On July 22nd , we are asking companies, clubs, institutions and organisations to set up a photo opportunity on your premises. All you need is a small space, an umbrella and a smartphone! Ask your staff, members and supporters to step in, take a photo on their smartphone (or your camer ...

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EFNA is registered in Belgium as an Association Sans But Lucratif (ASBL) #0543319269 | Website by www.bizify.ie

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