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World Continence Week 2017 – June 18th – 24th

World Continence Week (WCW) is an annual initiative with the primary aim to raise awareness about incontinence related issues. WCW was initiated by the International Continence Society (ICS) in 2008 with the first ever World Continence Day. This became World Continence Week (WCW) in June 2009 with activities being developed worldwide.  In 2016 the ICS passed WCW to EFNA member the World Federation of Incont ...

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EU Health Policy Platform with dedicated Pain Expert Group launched at the Societal Impact of Pain symposium

Valletta, Malta, June 9, 2017 The 7th annual Societal Impact of Pain (SIP) symposium, which took place on June 8th and 9th, saw clear policy recommendations  formulated to change pain care in the European Union for the better and alleviate the effect of pain on society. Martin Seychell, Deputy Director General in the Health and Food Safety's Directorate, announced in a speech that the European Commission is ...

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Value of Treatment for Brain Disorders’ report reveals wide disparities in treatment of brain diseases

The European Union spends just over three euro a year per patient on research into brain disorders – while levels of access to treatment in many Member States are becoming worse, not better, a medical conference organised by the European Brain Council (EBC) heard today. The EBC unveiled a new report, “The Value of Treatment for Brain Disorders”, which highlights the need for more investment into research on ...

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Pope Francis meets largest global gathering of the Huntington’s Disease community

The 18th of May saw the largest global gathering of the Huntington’s Disease community and for a very special reason. People from twenty-six countries had gathered to meet one man: Pope Francis, at The Vatican. They came to tell the world that Huntington’s disease should be Hidden No More. The event came to life thanks to a coalition of HD advocates. They formed the HDdennomore (“Hidden no more”) initiative ...

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Multiple Sclerosis House comes to the European Parliament for the first time

A truly virtual and immersive experience to mark World MS Day 2017 For the first time ever and in time for World MS Day on May 31 2017, the Multiple Sclerosis (MS) House is coming to the European Parliament to shine a light on the challenges faced by 700,000 people with MS in Europe. This is a unique opportunity for members of the European Parliament and visitors to have a fully immersive and virtual experi ...

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Researchers and patients brought together by a new grant offer

Pain Alliance Europe and Grünenthal are together introducing an initiative which will encourage patient-centric, patient driven, scientifically robust innovation and research projects, while creating better access to innovative treatments, promoting prevention and self-management approaches, decreasing stigma and finally, working together to improve quality of life for people living with these disabling co ...

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The Social Pillar – new legislative initiative granting minimum rights to carers

EFNA has taken an active interest in the European Commission’s paper on the Social Pillar. The Social Pillar provided us with an opportunity to raise awareness of the need to support patients and carers inclusion in EU workplaces. In addition, the consultation also encompasses topics like access to healthcare and social services and long term care which are essential to patients.   With PAE we contributed t ...

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EFNA to host Professionals and Public Event on Palliative Care at EAN Annual Congress 2017

Deadline for registration extended to June 20th The annual congress of the European Academy of Neurology comes to Amsterdam this June. To mark the occasion, the European Federation of Neurological Associations is organising a Professionals and Public Meeting on Palliative Care. National and International Experts will come together to explore a series of questions in relation to the palliative care of neurol ...

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EFNA host Governance & Transparency Workshop

A two-day workshop on Governance and Transparency was held by EFNA in Dublin from March 22 – 23rd. Noémi Ambrus, Senior Trainer with Civil Support, Budapest hosted the workshop. Governance We began by examining the board’s roles and responsibilities. These can be summarised as to: Establish Mission Set Direction Ensure Resources Provide oversight Extend outreach Noémi described board members as needing to w ...

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Burden of Stroke in Europe Report to be launched at first EU Stroke Summit

On May 11th The Stroke Alliance for Europe (SAFE) will host the first EU Stroke Summit and launch of the Burden of Stroke in Europe report at the European Parliament in Strasbourg. Stroke accounts for more than 9% of all deaths and is the leading cause of long term severe disability in Europe. Despite its impact on societies and economies, stroke continues to receive limited attention among European policy- ...

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