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Shire Announces 2016 Excellence in ADHD Patient Group Award Winners

To coincide with ADHD Awareness Month, Shire plc today announced the winners of the 2016 Excellence in ADHD Patient Group Awards.[1] The awards celebrate outstanding work by patient advocacy organisations around the world that aim to improve the lives of people with attention-deficit/hyperactivity disorder (ADHD). On behalf of Shire, an international panel of judges, including EFNA President Ann Little, awa ...

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EFNA ANNOUNCE WINNERS OF NEUROLOGY ADVOCACY AWARDS 2016

In 2016, EFNA held – once again – its Neurology Advocacy Awards. These awards recognise the contribution of an individual or group to the development and promotion of advocacy for people with neurological disorders in Europe. This year’s winners were presented with their awards at a Gala Dinner in Dublin on October 13th. The winning European Policy-Maker for 2016 was Marian Harkin MEP. She was nominated for ...

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TRAINING INITIATIVES FOR NEUROLOGY ADVOCATES LAUNCH

In 2016, EFNA launched its Training Initiatives for Neurology Advocates [TINA]. For many years EFNA has run workshops on Health Technology Assessment and, lately, Pharmaceutical Policy – Pricing, Access and Reimbursement at the London School of Economics. However, feedback from participants indicates that patients now need to be equipped to use the theoretical knowledge gained on these processes, and the wi ...

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ACCESS TO EMPLOYMENT FOR THOSE AFFECTED BY NEUROLOGICAL DISORDERS AND CHRONIC PAIN CONDITIONS

The launch of the Written Declaration will take place on October 25TH 2016 at the European Parliament, Strasbourg. The event will take place during a Breakfast Meeting from 8.30am at the Member’s Salon. For further information on the Written Declaration please visit the Brain Mind and Pain MEP Interest Group website here or contact our EU Affairs person, Heather Clarke, at euaffairs@efna.net. ...

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Together Under the Umbrella for Invisible Disabilities Awareness Week

Let’s make the Invisible Visible this October! Invisible disability is a term that captures a whole spectrum of hidden symptoms or challenges that are primarily neurological in nature. Many brain and brain-related disorders cause symptoms that are not obvious to an onlooker. These symptoms can include pain, fatigue, sleeping problems, dizziness, cognitive dysfunction, brain injuries, learning difficulties a ...

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EFNA welcomes second neurological patient experience survey

The Neurological Alliance (England) has launched its second neurological patient experience survey. The survey aims to collect vital information about the experiences of care received by people affected by neurological conditions and help us to understand how much progress has been made in improving neurological services. The survey is open until September 30th and the Alliance welcomes responses from anyon ...

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Association of Patients with Neurodegenerative Conditions in Romania (APAN) is launched on World Brain Day

The 22nd of July was World Brain Day, an initiative of the The World Federation of Neurology. This year, the theme was linked to the ageing population and the chosen motto was 'The ageing brain'. The prevalence of a number of neurological diseases increases with age, including stroke, dementia, and Parkinson’s disease. It is estimated that 10 to 20 percent of people aged 60 to 80 years suffer from one or mo ...

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Good practice for the off-label use of medicines – Save the Date

An event on “Safeguarding patient safety and quality of care in Europe: Good practice for the off-label use of medicines” will be hosted by MEP Piernicola Pedicini in the European Parliament in Brussels on Tuesday 27 September 2016, between 10.00 and 12.00. This meeting, which brings together a number of leading healthcare and policy stakeholders, aims to thoroughly examine the issue of off-label use of med ...

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A Big Splash for Together Under the Umbrella on World Brain Day!

On July 22nd, in celebration of World Brain Day 2016, we asked you to get ‘under the umbrella’ for our Big Splash! Individuals, companies, institutions and organisations were encouraged to take a photo under an umbrella and share it to social media to raise awareness of the wide range of brain disorders. We were overwhelmed by the response. People from around the world – including patients, carers, pharmace ...

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Patient Involvement in Research – How and Why those with Brain, Mind and Pain Disorders must be involved – Meeting Report

22 June 2016, 8.30 -10.00h Members’ Salon, European Parliament, Brussels An initiative of the European Federation of Neurological Associations [EFNA] & Pain Alliance Europe [PAE] This meeting was hosted by Marian Harkin MEP, who opened by saying that many life-threatening diseases have been eradicated thanks to years of effort by physicians, scientists, and medical professionals investigating the causes ...

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EFNA is registered in Belgium as an Association Sans But Lucratif (ASBL) #0543319269 | Website by www.bizify.ie

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