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Researchers and patients brought together by a new grant offer

Pain Alliance Europe and Grünenthal are together introducing an initiative which will encourage patient-centric, patient driven, scientifically robust innovation and research projects, while creating better access to innovative treatments, promoting prevention and self-management approaches, decreasing stigma and finally, working together to improve quality of life for people living with these disabling co ...

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The Social Pillar – new legislative initiative granting minimum rights to carers

EFNA has taken an active interest in the European Commission’s paper on the Social Pillar. The Social Pillar provided us with an opportunity to raise awareness of the need to support patients and carers inclusion in EU workplaces. In addition, the consultation also encompasses topics like access to healthcare and social services and long term care which are essential to patients.   With PAE we contributed t ...

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EFNA to host Professionals and Public Event on Palliative Care at EAN Annual Congress 2017

The annual congress of the European Academy of Neurology comes to Amsterdam this June. To mark the occasion, the European Federation of Neurological Associations is organising a Professionals and Public Meeting on Palliative Care. National and International Experts will come together to explore a series of questions in relation to the palliative care of neurology patients, using examples from the fields of: ...

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EFNA host Governance & Transparency Workshop

A two-day workshop on Governance and Transparency was held by EFNA in Dublin from March 22 – 23rd. Noémi Ambrus, Senior Trainer with Civil Support, Budapest hosted the workshop. Governance We began by examining the board’s roles and responsibilities. These can be summarised as to: Establish Mission Set Direction Ensure Resources Provide oversight Extend outreach Noémi described board members as needing to w ...

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Burden of Stroke in Europe Report to be launched at first EU Stroke Summit

On May 11th The Stroke Alliance for Europe (SAFE) will host the first EU Stroke Summit and launch of the Burden of Stroke in Europe report at the European Parliament in Strasbourg. Stroke accounts for more than 9% of all deaths and is the leading cause of long term severe disability in Europe. Despite its impact on societies and economies, stroke continues to receive limited attention among European policy- ...

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Calling the EU to action after 200 years of Parkinson’s disease

To mark the 200-year anniversary of the discovery of Parkinson’s disease on 11 April, the European Parkinson’s Disease Association (EPDA) held a high-level policy workshop in the European Parliament on 29 March. Donna Walsh, EFNA’s Executive Director, moderated the discussions, which focused on the cross-cutting challenges to timely diagnosis and individualised treatment and care, and what lawmakers in Brus ...

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EFNA joins global appeal to #Unite for Parkinson’s

#Unite for Parkinson’s, a campaign launched earlier this year by two of Europe’s leading Parkinson’s charities – the European Parkinson’s Disease Association (EPDA) and Parkinson’s UK – aims to raise international awareness of the condition on World Parkinson’s Day (Tuesday 11 April), 200 years after it was first officially recognised. The campaign is spreading across the world, with thousands of campaign p ...

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Cluster Headache Awareness Day 2017

‘Arguably one of the worst pains known to man’ Announcing Cluster Headache Day– 21st March in European Parliament, Brussels. The event will be held in the room Altiero Spinelli A1H-1 from 11.00 to 13.30. March 2017 – The European Headache Alliance (EHA) and European Headache Federation (EHF) announce the second ‘Cluster Headache Day’ event hosted by MEP Stevens on 21st March 2017. Cluster Headache (CH) affe ...

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Societal Impact of Pain (SIP) 2017 Registration Opens

The SIP 2017 symposium from the 7th and 9th of June 2017 will take place under the auspice of the agenda of the 2017 Maltese Presidency of the Council of the EU in Valletta, the capital of Malta. Inspired by the Maltese presidency “Structured Cooperation between Health Care Systems tackling the societal impact of pain!” has been chosen as the title for SIP 2017. Experts from multiple disciplines will attend ...

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EMEA Organises Meeting in EU Parliament on Myalgic Encephalomyelitis (ME)

The European ME Alliance is a collaboration of 13 Myalgic Encephalomyelitis (ME) organisations in European countries who have the common aim of promoting biomedical research into Myalgic Encephalomyelitis and increasing awareness of this debilitating neurological disease. Following months of planning EMEA is arranging a high-level meeting in the European Parliament on 7th March 2017. The meeting will cover ...

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EFNA is registered in Belgium as an Association Sans But Lucratif (ASBL) #0543319269 | Website by www.bizify.ie

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