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Stroke Alliance for Europe (SAFE)

SAFE is a non-profit-making organisation that represents a range of patient groups from across Europe whose mutual goal is to drive the stroke prevention up the European political agenda and prevent the incidence of stroke through education. Its vision is to work towards greatly decreasing the number of strokes in Europe and that all who are impacted, receive the help and support they need. SAFE engages in ...

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Retina Europe

Retina International  is a voluntary charitable umbrella association of 33 national societies each of which is created and run by people with Retinitis Pigmentosa, Usher Syndrome, Macular Degeneration and allied retinal dystrophies, their families and friends. www.retina-international.org ...

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International Brain Tumour Alliance (IBTA)

The International Brain Tumour Alliance (IBTA) was established during the conference of the World Federation of Neuro Oncology held at Edinburgh (UK) in May 2005. It seeks to be an alliance of the support, advocacy and information groups for brain tumour patients and carers in different countries and also includes researchers, scientists, clinicians and allied health professionals who work in the area of br ...

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European Polio Union

The European Polio Union (EPU) is a European umbrella organisation for national organisations that support people who have had polio and for people that are currently coping with Post Polio Syndrome (PPS). The EPU aims, by bringing all those organisations together, to strengthen their force, to learn from each other and to help each other. In some countries in Europe the knowledge and treatment of PPS is (m ...

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European Network for Research in Alternating Hemiplegia (ENRAH)

The European Network for Research on Alternating Hemiplegia (ENRAH) brings together patients and their families seeking support and improved healthcare for those suffering from Alternating Hemiplegia in Childhood (AHC). ENRAH collaborates with all patients, patient organisations, research groups, and other interested parties across Europe in order to share experiences, concerns, information, knowledge, unde ...

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European Multiple Sclerosis Platform (EMSP)

The EMSP is a non-political, non-religious or non-philosophical affiliation and non-profit making charity. The purpose of the association is to exchange and disseminate information relating to multiple sclerosis and deliberate upon and consider all questions, problems and measures, legislative or otherwise; encourage research of all kinds that is appropriate to multiple sclerosis through medical and other a ...

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European Huntington Association

The European Huntington Association supports people affected by HD by sharing information and using their unique cross border network to enhance the search for treatment for HD and to improve the lives of those living with HD. www.eurohuntington.org ...

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European Headache Alliance (EHA)

European Headache Alliance (EHA) is a Patient umbrella group which aims to coordinate the work of national patient organisations to raise awareness of headache related issues throughout Europe, promoting early diagnosis and access to appropriate treatment. The purpose of EHA is to represent the views and needs of headache patients across Europe to the European Union and other relevant institutions with the ...

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euro-ATAXIA

euro-ATAXIA is a non-profit, non-governmental, European organisation representing people in Europe with ataxia. Its objectives are to promote interaction between Scientists and Medical Doctors; communicate the latest medical research findings including clinical trials to the members of euro-ATAXIA; co-operate with or be affiliated to other national and international organisations and institutions that promo ...

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EFNA is registered in Belgium as an Association Sans But Lucratif (ASBL) #0543319269 | Website by www.bizify.ie

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